We are so thankful to our friend Nerea who did a wonderful thing for us. She recently run Sheffield Half Marathon (!) and raised money for our cause. She also […]
My Little sausage made my day! I had tears in my eyes when he got back from Bluebell with gorgeous gifts! I love you my little angel! Thank you Anthony […]
Anthony’s been to Bluebell Wood Hospice last Saturday. He had a great fun with his favorite sensory toys and fully enjoyed his time there. Thank you Bluebell for a fab […]
We got a brand new wheelchair today. Just look at the picture to see how comfy it is.
My older son, who is nearly 5, eating his breakfast, asked me today unexpectedly: “When Anthony is sick again will he die? “ I was both shocked by his understanding […]
Paper on Glycine Encephalopathy (NKH) If you’d like to know more about the NKH please follow above link. You can also access the free full text: http://www.ncbi.nlm.nih.gov/books/NBK1357/ Many thanks for […]